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 Topic: FbcP
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Informations: AUA – 2007 is now starting in Anaheim, Ca
Enviado por : Admin em Domingo, 20 de Maio de 2007 - 01:23:17 (GMT)
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4333 leitores
(Anaheim, CA, May 19) The greatest urological congress in the world, the 102nd Annual Meeting & Exhibts of the American Urological Association (AUA) is running today. Thousands of physicans and urologists worldwide discusses from May 19 to 24 about new treatment and diagnosis in urological medicine.
Founded in 1902 and headquartered near Baltimore, Maryland, the American Urological Association is the pre-eminent professional organization for urologists, with more than 15,000 members throughout the world. An educational nonprofit organization, the AUA pursues its mission of fostering the highest standards of urologic care by carrying out a wide variety of programs members and their patients, including UrologyHealth.org, an award-winning on-line patient education resource, and the American Urological Association Foundation, Inc.
To honor sound reporting and outstanding news coverage of urologic disease topics, the American Urological Association has announced the establishment of its Annual Excellence in Urology Health Reporting Award. Presentation of the awards will take place during a special press reception on Saturday, May 19, 2007 in Anaheim in conjunction with the AUA Annual Scientific Meeting.
The award is designed to honor journalists in both trade and consumer media outlets for responsible, informative reporting on health topics in urology. Awards will be given annually in the following categories: Consumer Print Publications, Consumer Electronic Publications and Trade Publications. Applicants may submit their own work, or be nominated. Awardees will receive a stipend and award.
“Over the past decade, media interest in urologic topics has increased significantly, and there is an abundance of information available to the public as a result,” said Ira D. Sharlip, M.D., chair of the AUA Public Media Committee. “We feel that it is very important to honor journalists who have excelled in presenting urology in a thorough, balanced and effective manner.”
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Informations: German-based Federation of bladder cancer Patients driving home the message
Enviado por : Admin em Terça, 23 de Maio de 2006 - 18:22:48 (GMT)
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5539 leitores
Bladder Cancer Screening and Support Groups Are Needet Worldwide
(Atlanta, GA, May 22, 2006) The Federation of bladder cancer Patients (FbcP) at www.bladder-cancer.net based in Berlin, Germany is a global internet organization for patients with bladder cancer. The FbcP is also driving home its message for worldwide awareness of bladder cancer, literally via a "Bladder Cancermobile". Detlef Höwing, a German journalist, was diagnosed with bladder cancer in 2002. He now drives his Bladder Cancermobile throughout Germany to encourage education and the development of self-help groups for this cancer.
"Through the website, Bladder Cancermobile and other activities, we hope to encourage more support groups where cancer patients help cancer patients through the exchange of current health reports and therapeutic updates relevant to this disease," said Detlef Höwing, FbcP encourages the exchange of communication on a worldwide basis that includes patients and clinicians.
 Now Höwing is taking his message global to the more than 13.000 urologists attending the 2006 annual meeting of the American Urological Association, held in Atlanta, GA.
"As a reporter, I am interested in learning about worldwide bladder cancer research developments and treatments; as an advocate, I hope to encourage more awareness of bladder cancer education worldwide."
"After I was diagnosed with bladder cancer in 2002, I wanted to exchange views personally with other patients and search for self-help groups in Germany," said Höwing.
By 2004 Höwing had created the "online-journal human & cancer" at www.mensch-und-krebs.de , as a project of the Selbsthilfe Harnblasenkrebs e.V. (Support federation of bladder cancer), www.selbsthilfe-harnblasenkrebs.de in Germany. He published various articles in German and English about cancer. The idea for the www.bladder-cancer.net website and the organization originated at the 57th urologic cangress, held in Düsseldorf, Germany in September 2005.
 Höwing reports that more and more individuals are using the worldwide web for information. Visits to www.bladder-cancer.net (the offical site of FbcP) and the other sites of the organization and its projects total approximately 100.000 visits each mounth. "That's good news," says Höwing, "but there is much work to be done to drive home the message that more adults need to be aware of the bladder cancer risk factors, namely smoking and occupation exposure to chemical and dyes, and the key symptom, blood in the urine."
"My dream is that all people (bladder cancer patients) in the United States, United Kingdom, Germany, Sweden, Netherlands, and other Countries can have opportunity to publish articles about their experiences, activities and meetings, and would be able to receive and exchange information about the newest research in the field, both in English and their own language."
Bladder Cancer Statistics from Germany
- In Germany, 400.000 people sicken anually from cancer
- According to the newest values reported from the Robert Koch Institute, the number of newly diagnosed bladder cancer patients is on rise in Germany:
- 16.000 cases reported in 2000
- 24.700 cases reported in 2004
- The share of the invasive and palliative tumors remains unchanged during a 40-year period, 33 percent.
- Cancer-mortality can be reduced by up to 50% with provision-measures and can be reduced by up to 10% with early diagnosis-measures.
Comments about self-help groups in Germany
Althouth the innovative treatment of bladder cancer progresses, the work of cancer-support groups will increasingly gain importance in the next years.
"Without life-courage and psychological support and care, the best tumor-therapy cannot work successfully. The cancer-self-help madde itself to the task, to help, to provide courage, and to achieve practical help," said Ulla Schmidt, the federal minister for health of Germany. "The self-help is an essential part of our public health... the people in the support groups fulfill tasks, which supplement the proffessional offers of the medical supply in deverse and effective age, where people, which shar their experiences with others, commit here."
Mission of the FbcP
The Selbsthilfe Harnblasenkrebs e.V. faced the task along with the Federation of bladder cancer Patients (FbcP) through the enlightenment of the population and the support of meaningful early diagnosis measures, to lower the number of the people, with which an advanced bladder cancer is diagnosed and of the people, that will often die of this disease. For the concerned people, also their families, we offer a forum to share information and experiences. Furthermore, we take part in clinical research projects, where we work together with leding German clinics, like the Charite, Berlin.
The FbcP has supported initiatives, like those from Dr. Gerson Lüdecke, expert for urine-tumor marker studies from the University clinic in Giessen. Dr. Lüdecke spoke recently at the German cancer congress and EAU about the necessity of a provision for care of the bladder carcinoma, especially under consideration of inclusive screenings of risk groups of bladder cancer. Dr. Lüdecke said:
"We can improve the diagostics of the bladder carcinoma through a structure reorientation. Risk adapted screening is one of the most important points in the cancer provision surely in order to get costs and usefulness effectiveness."
For more information, contact:
FbcP c/o Detlef Höwing,
Quickborner Str.71,
13439 Berlin, GERMANY
email: info@bladder-cancer.net
www.bladder-cancer.net
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Informations: BCAN - New National Bladder Cancer Awareness Organization
Enviado por : Admin em Terça, 23 de Maio de 2006 - 18:18:04 (GMT)
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5124 leitores
Atlanta, May 22, 2006 - The Amarican Urological Association Foundation and the Bladder Cancer Advocacy Network (BCAN), www.bcan.org the first national patient-based organization for bladder cancer, announced today that they have formed a partnership to help promote awareness of bladder cancer, the 5th most prevalent cancer in the U.S.
As Part of the agreement, the two organizations will work together to help spread awareness among patients and the general public in USA. As a first step, the Foundation and BCAN plan to hold patient symposia across the country, with the first scheduled for the fall of this year. And in the future, BCAN and the AUA Foundation will work together with the global Orgaization: Federaion of bladder cancer Patients - FbcP, find at www.bladder-cancer.net .
"Given the importance of making people aware of this serious disiease, the AUA Foundation is pleased to join with BCAN in helping the public learn more about bladder cancer," said John Huber, executive director of the AUA Foundation. " We are proud to join BCAN in this mission to help educate people about the latest research, symptoms and treatments of this disease. Together we can help raise awareness and hopefully help save lives in the process."
In addition to the AUA Foundation, BCAN has received the support of the medical community. More than 20 prominent academic urologists, oncologists and radiologists, representing many of the major cancer centers in the United States, serve on BCAN's Scientific Advisory Board.
"Despite the fact that there are more than 63.000 new patients diagnosed with bladder cancer and 13.000 deaths annually, it has been treated like the "elephant in the room," the disease no one wants to talk about in public," said Diane Quale, president of BCAN. "With the help of the AUA Foundation and others, we hope to address the issue at all levels - so that bladder cancer is no longer the silent disease."
BCAN also recently announced that the actor Tate Donovan will join the organization as both a national spokesperson and member of the BCAN Board of Directors. Donovan will attend the AUA conference to express the importance of raising awareness about the disease.
Donovan and his family have been profoundly affected by bladder cancer. His father, Dr. Timothy Donovan, at the time a retired urologist, died of bladder cancer in 2000. His mother also was diagnosed with superficial bladder cancer in October 2005.
As spokesperson for BCAN, Donovan will appear in educational materials, as well as tell his family's story to the medical community and to the public to help spread awareness about the disease and its symptoms.
"We believe Tate can help us bring a national voice to bladder cancer in much the same way that Katie Couric increased public awareness of colorectal cancer," said Diane Quale. " His family's experience is a very real example that the need for awareness is mandatory - even among doctors - and that the disease can affect anyone at any time."
BCAN was founded by Diane Zipursky Quale and her husband, John Quale. John is a Bladder cancer survivor who was initially diagnosed in July 2000. Since they began dealing with the disease, they have discovered that there is little knowledge about bladder cancer and that there is only a limited amount of information avaiable to those suffering from it. Diane and John thought it was time to give a voice to bladder cancer and the hundreds of thousands of survivors of this disase.
Additional information about BCAN and bladder cancer can be found on the organization's web site:
www.bca.org
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No smokers during the WM in the stadium
Enviado por : Admin em Terça, 09 de Maio de 2006 - 09:51:12 (GMT)
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1970 leitores
 | An initiative of UICC Global Smokefree Partnership
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German football stars announce Football World Cup 2006 should be smokefree
Geneva. World-class footballers Gerald Asamoah and Ebbe Sand want to kick tobacco out of the 2006 World Cup. The two teammates, who play for Schalke 04 – popularly known in Germany as the “Royal Blues” – are getting behind the Smokefree Football World Cup 2006 campaign. With just over a month to go to the kick-off in Berlin on June 9, it is not too late for the Fédération Internationale de Football Association (FIFA) and the national organising committee to declare the Cup smokefree, they say. “We are world class – the world class is smokefree,” says Gerald Asamoah. “That’s why we need smokefree stadiums at the World Cup.” Ebbe Sand agrees. “We should have smokefree stadiums because our guests expect that.” The smokefree campaign was launched because health organizations realized that although the last World Cup was free from tobacco smoke and the next World Cup will be too, smoking will be allowed in this year’s competition in stadiums across Germany. Michael Bamberg, the president of the German Cancer Society, welcomes the stand taken by Asamoah and Sand. “They demonstrate a high degree of social responsibility and prove themselves role models for young people in the best sense,” he says. “We hope other footballers and celebrities will follow their example and speak up for a smokefree World Cup”. The Smokefree Football World Cup 2006 campaign is the brainchild of a Global Smokefree partnership led by the International Union Against Cancer (UICC), a Geneva-based federation of national cancer societies, cancer research institutes and other bodies. “Only 100% smokefree policies can protect lives and promote health,” says Isabel Mortara, UICC’s executive director. “As the world prepares for the largest sporting event in the world, let’s make sure that fans around the globe will witness a celebration of sport, life and health. Tobacco has no place in this picture.”
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Adjuvant therapy: A USC experience with molecular correlates.
Enviado por : Admin em Domingo, 02 de Outubro de 2005 - 18:12:44 (GMT)
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916 leitores
Adjuvant gemcitabine and cisplatin (GC) for locally advanced cancer of the bladder after radical cystectomy:
Background:
Invasive bladder cancer has a 50% mortality rate. Adjuvant chemotherapy is used to try to improve survival, but is of unproven benefit. GC and MVAC have similar response rates and survival in the metastatic setting, with GC having less toxicity (JCO 17: 3068). We have used the GC regimen for patients with high grade bladder cancer with poor prognostic features after cystectomy when they have not been candidates for MVAC for medical or personal patient reasons.
Methods:
We conducted a retrospective study of patients treated with adjuvant chemotherapy between 1997 and 2002. Chemotherapy consisted of 3-4 cycles of adjuvant Gemcitabine 1000mg/m2 (days 1 & 8) and Cisplatin (35mg/m2 days 1 & 2). All patients undergoing radical cystectomy and receiving adjuvant GC at USC were eligible. Medical records were examined and tissues were studied for various molecular markers, including p53, ribonucleotide reductase (RR) and ERCC1.
Results:
25 patients met inclusion criteria. Median age was 68; 72% were pT3 or pT4; 68% had lymph nodes involved. All patients had transitional cell carcinoma. P53 was mutated in 75%. The median number of cycles of GC was 3 (84% had 3-4 cycles). 11 patients (44%) had grade 3 or 4 hematologic toxicity and 2 (8%) had grade 3 non-hematologic toxicity. Median follow-up was 25.1 (8.7-49.7) months. 8 patients have died. The median time to recurrence was 49.7 (12.3-49.7+) months with median overall survival of 49.7+ (16.6-49.7+) months. Evaluation of tissue blocks for molecular correlates such as ERCC1 and RR is in progress and will be reported.
Conclusions:
Adjuvant GC chemotherapy is feasible and effective in the setting of locally advanced bladder carcinoma and will be studied in a prospective, randomized fashion. For the 17 patients with node-positive bladder cancer, adjuvant GC is associated with disease-free median survival of 23.6 (11.3, 49.7+) months and median survival of 23.8+ (16.6, 49.7+) months.
| Authors: | A. B. El-Khoueiry, S. T. Tagawa, D. I. Quinn, R. Panares, D. Tsao-Wei, J. Stein, D. G. Skinner, D. Raghavan; University of Southern California, Keck School of Medicine, Los Angeles, CA |
Event: 2004 ASCO Annual Meeting
Presenter: Anthony B. El-Khoueiry, MD
Session: Genitourinary Cancer
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Our new Website
Enviado por : Admin em Sexta, 30 de Setembro de 2005 - 10:56:58 (GMT)
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1599 leitores
Here, we build a webpage of the new Federation of bladder cancer Patients - FbcP The Federation of bladder cancer Patients will be the global organization
of all bladder patients of the world.
It was created 2005 by the Selbsthilfe Harnblasenkrebs Berlin from Germany,
seen at www.selbsthilfe-harnblasenkrebs.de
Our goals are:
- To give informations for patients and their families about the disease and the therapy-possibilities, as inclusively as possible.
- To give and help for world-wide contacts with telephone, Internet and email, personel conversations, group-offers and information-events.
- To give the exchange to other support groups worldwide, physicans and clinics.
- To give an Internet - information-service for patients and their families.
- To give subject-specific and scientific acticles for medical manpower.
- The world-wide support of existing support groups in their work with bladder cancer patients.
- The world-wide help of the reestablishment of regional and national support groups.
At 2004, I create the "online-journal human & cancer" at www.mensch-und-krebs.de , and the site www.selbsthilfe-harnblasenkrebs.de here in Germany.
As a journalist, I published some articles in german and english languages about cancer.
The idea for this website and the organization originated at the 57th urologic congress, held in Düsseldorf, Germany in September 2005. The ideas of this international organization for bladder cancer patients are:
My dream is that all the peoples in the United States, the United Kingdom, Germany, Sweden, the Netherlands, and other countries could have the opportunity to publish articles about their experiences, activities and meetings, and would be able to provide information about the newest research in the field, both in English and in their own language.
This site would also be the place where medical personnel could publish articles. Integrated into the site would be a community forum for all people in the world who have the bladder cancer disease. It would be a place where they and their families could exchange informations and communicate on a global basis.
But these project can not live without the support of the great organisations and peoples, to inform about the bladder cancer disease and its researches.
Please contact me, if you or your organization are interested, to support this global international and worldwide Federation and website: Detlef Höwing
Quickborner Str.71
13439 Berlin, GERMANY
email: info@bladder-cancer.net
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